Newborn Screening Saves Lives Reauthorization Act of 2025
This bill has gone quiet.
No action in 11 months. It hasn't officially died, but bills this inactive rarely revive.
This bill reauthorizes through FY2030 and revises several programs and activities relating to newborn screening for certain conditions and diseases. Among its changes, the bill reauthorizes and makes mandatory the Hunter Kelly Research Program at the National Institutes of Health, and national surveillance activities conducted by the Centers for Disease Control and Prevention. The bill also provides statutory authority for current regulations that exempt federally funded research on non-identified newborn blood spots (i.e., residual blood samples used to screen for serious conditions) from regulations that govern research on human subjects.
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This house bill has been filed and is working its way through Congress. It will need to pass both the House and the Senate, then be signed by the President to become law.
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